- Disclaimer
- Introduction
- Week 25 – Roller Coaster of Doctor Appointments
- Week 25.5 – Ultrasound
- Week 26 – Excited Doctor Alert
- 3:17:22
- 10/8/13 – Morning Update
- 10/9/13 – Fast Moving Day
- 10/10/13 – Decision Time
- 10/10/13 – Thomas Ulysses Grote
Sent at 1:28pm
Sent at 2:39pm
Sent at 4:11pm
Sent at 6:33pm
Details and Thoughts
New Home
10/11/13 – The First Real Day
NICU (neonatal intensive care unit)
Tommy
Missy
Family
Details and Thoughts
10/12/13 – Here We Go
Missy
Tommy
Family
Details and Thoughts
10/13/13 – A Great Day
Missy
Tommy
Family
Details and Thoughts
10/14/13 – Missy and I are Home
Tommy
Family
Details and Thoughts
10/15/13 – Today was a Good Day
Missy
Tommy
Scary Time
Details and Thoughts
10/16/13 – Not Much Science
Shannon
Tommy
The Doctor
Details and Thoughts
10/17/13 – Happy One Week Birthday
Tommy
Details and Thoughts
10/18/13 – Quick Update
Details and Thoughts
10/18/13 – Wonderful Day
Tommy
CPAP
Feeding
Ductus
Brain Ultrasound
Kangarroing
Details and Thoughts
10/19/13 – Walley World
Blood
Heart Murmur
IV Line
Urine Output
Kangarooing
Yeah, About that IV Line
Details and Thoughts
10/20/13 – Gentle Curves in the Road
White Cells
The Proof
You’re In Not Out
Blood
Clear and Easy
How is Tommy?
How are we?
Details and Thoughts
10/21/13 – It All Falls Apart
The Call No Parent Wants
Arriving to a Hug
Dr. Maurer Takes Over
Stabilized
Note to Family and Friends
Family Only Update
Out of Crisis Mode
Test Results
Details and Thoughts
10/22/13 – Progress
Details and Thoughts
10/22/13 – Stabilization
Details and Thoughts
10/23/13 – Exhale
Details and Thoughts
10/23/13 – No More
Work
Lungs
Heart
Head
Blood pressure
Urine output
Infection
Feeding
Weight
Details and Thoughts
Desats
10/24/13 – Happy two week birthday!
Infection
Breathing
Feeding
IV Line
Heart Echo
Brain Scan
Details and Thoughts
10/25/13 – Breathe Easier
Details and Thoughts
10/25/13 – Cutie Pie
Details and Thoughts
10/26/13 – Sibling Bonding
Shannon
Tommy
Cares
Details and Thoughts
10/27/13 – Middle of the Night Hospital Trip
Details and Thoughts
10/27/13 – Of Stories and Smiles
Today’s Visit
Decorating
Size
Details and Thoughts
10/28/13 – On His Own
Breathing
Feeding
Blood
Voiding
Weight
Details and Thoughts
10/29/13 – Jet Away
Details and Thoughts
10/29/13 – Impressively Wonderful Day
Details and Thoughts
10/30/13 – Sometimes Mom and Dad are Right
Feeding
Breathing
Shannon
Missy
Details and Thoughts
10/31/13 – Happy Three Week Birthday and Something is Missing
Missing
Weight
Extubation
Mail
Blood
Details and Thoughts
11/1/13 – Extubation Complete
Details and Thoughts
11/1/13 – When OK is Super Fabulously Excellent
Details and Thoughts
11/2/13 – Feed, Cry, Pacify
Feeding
Cry
Pacify
Details and Thoughts
11/3/13 – Touching
Rules
Play
Hospital
Details and Thoughts
11/4/13 – Let Me Get the Doctor
Morning
Lunch
Evening
Details and Thoughts
11/5/13 – We Interrupt your Routine
Routine
Tommy
Details and Thoughts
11/6/13 – Partners
Daddy Cares
Medical Team
All of You
Detail and Thoughts
11/7/13 – 4 Weeks
Nurses
Infection
Feeding
Home
Kangarooing First Time
Details and Thoughts
11/8/13 – Handling His … Business
Cares
Blood Sugar
Breathing
Voiding Update
Details and Thoughts
11/9/13 – Thriver
Fluids
Breathing
Video
Details and Thoughts
11/10/13 – Tears of Relief
Visit
The Bond
Tommy’s Health
Details and Thoughts
11/11/13 – Speaking Up
Visitor
Tommy’s Health
Details and Thoughts
11/12/13 – Missing a Few Things
Tommy Going Strong
Details and Thoughts
11/13/13 – Back and Forth
Feeding
Eyes
Family
Details and Thoughts
11/14/13 – Dumbfounded
The Card
The Email
The Letter
The Call
Details and Thoughts
11/15/13 – Connections
Shannon
Missy and Tommy
Cassie
Family and Friends
Details and Thoughts
11/16/13 – Vigilant Contentment
Tommy’s Health
Houdini
Kangaroo
Details and Thoughts
11/17/13 – Sugar, Sugar
Weather
Visits
The Specialist
Details and Thoughts
11/18/13 – Tommy is in Charge … and Melissa
Tommy’s in Charge
Melissa
Cute
Details and Thoughts
11/19/13 – Waves of Blessings
Breathing
Food and Vitamins
Occupational Therapy
Melissa
Details and Thoughts
11/20/13 – The Case of the Missing Calories
Where’d They Go?
Breathing Success
Insurance Fun
Details and Thoughts
11/21/13 – A Gift
Fellow Parent
Infection?
The Doctor is Out
Breathing and Blood Work
Details and Thoughts
11/22/13 – Spa Time
Spa Time
Bacteria
Details and Thoughts
11/23/13 – Sister Time and Snacks
Sister Time
Missing Out
Being There
Details and Thoughts
11/24/13 – Wait. What?
Doctor Jung
Health
Details and Thoughts
11/25/13 – High Five
Grandma Visits
Olive Oil, Not Popeye
Breathing
Electrocardiogram
Details and Thoughts
11/26/13 – It Wasn’t Even Mine
Breathing
Feeding
Holding
Details and Thoughts
11/27/13 – Happy 34 Weeks
Blood Work
Feeding
Middle Name
Details and Thoughts
11/28/13 – Tommy Turkey
Nurses
Coughing Sneezing
Blood Work
Feeding
Eyes
Details and Thoughts
11/29/13 – The Tommy Express
Corrections or Patrick was Tired
Diaper Challenges
CHILLING AND HEATING
Scary Times
Feeding
Details and Thoughts
11/30/13 – Aunt and Uncle
Visitors
Clothes
Feeding
Details and Thoughts
12/1/13 – Steady with a Chance of Visitors
Potassium
8AM Cares
Visitors
Feeding
Details and Thoughts
12/2/13 – Saving the Best
Visit
Breathing
Night Visit
Feeding
Blood Work
Details and Thoughts
12/3/13 – You Look Nervous
The Call
Low Flow
Feeding
Details and Thoughts
12/4/14 – Just Liver Damage
Elevated Alkaline Phosphatase
Insurance
Breathing
Crib Change
Energy
Feeding
Details and Thoughts
12/5/13 – Further Away, but Closer
It’s Not 7PM
Panda Pod
Medical
Feeding
After
Details and Thoughts
12/6/13 – Following Up
Feeding
Moving Again
8 Weeks Old
What Happened To Me
Details and Thoughts
Breaking Down
The Unit Mate
Sailing Through
The Stairs
The Time Gets Longer
Shutting Out
The Second Night
Laundry
Sharing
My Drip
12/7/13 – Cassie’s Day
Cassie Time
Blood Work
Feeding
Details and Thoughts
12/8/13 – Day of Voiding
Weekend
Play
Breathing
Voiding
Feeding
Details and Thoughts
12/9/13 – Bottle Service
Feeding
Blood Work
Room Change
New Years
Thriving
Details and Thoughts
12/10/13 – 2 Months … Oh, the details …
2 Month Tommy
Liver Ultrasound
Growth Chart
Cares
Eye Check
Night Time
Details and Thoughts
12/11/13 – Like a Champ
Liver Test
Cares
Feeding
Details and Thoughts
12/12/13 – Guilty
Two for One
Noon Cares
Feeding
Jock No Itch
Details and Thoughts
12/13/13 – Big Boy
Feeding
Breathing
Growth
Cares
Heather
Details and Thoughts
12/14/13 – Drifting
Breathing
Snow
Feeding
Suction
Sins of the NICU
Weight Time
Details and Thoughts
12/15/13 – Special Visitor
My Visit
Missy’s Visit
Special Visit
Details and Thoughts
12/16/13 – Tommy the Baby
New Residence
Feeding
Blessed
Details and Thoughts
12/17/13 – The First of Many
Feeding
Vaccinations
Sounds
Growth
Details and Thoughts
12/18/13 – Emotion and Logic Stumble into a NICU – One Emerges the Victor
Blood Work
Insurance
Feeding
Cute Tommy
Details and Thoughts
12/19/13 – Nipplegate
Feeding
Preparations
Details and Thoughts
12/20/13 – The Bump
Things Get By
The Bump
The Decision
Dr. Jung
Let’s Get Physical
Bump Follow-up
Details and Thoughts
12/21/13 – ‘ions
Frustration
Expiration
Intervention
Explosion
Emotion
Affection
Confirmation
Details and Thoughts
12/22/13 – Massage
Massage
Moving Around
More Consultation
Feeding
Details and Thoughts
12/23/13 – Coalescing
Words
PDA
Feeding
Details and Thoughts
12/24/13 – Goofing Around
Eye Exam
Decorations
Goofing Around
The Hospital Calls
Details and Thoughts
12/25/13 – Crossing the Important Line
Feeding
Care Plan
ALL DAY
Details and Thoughts
12/26/13 – Checking Off
Feeding
Classes
Surgery
Sleeping
Details and Thoughts
12/27/13 – The First Time
Feeding
PDA and Heart
Grandma and Grandpa
Winter Baby
Details and Thoughts
12/28/13 – Growth
Feeding
Visit Time
Heart
Medical
Details and Thoughts
12/29/13 – Milk Drunk
Feeding
Wardrobe Malfunction
Cuteness
Details and Thoughts
12/30/13 – Extraordinarily Inconceivable
Feeding
Surgery
Breathing
Dr. Maurer
Details and Thoughts
12/31/13 – Surgery Day
Surgery
Post Surgery
Tonight
Details and Thoughts
1/1/14 – Reacting
Morning Call
What Happened
Feeding
Recovery
Details and Thoughts
1/2/14 – He Really is a Baby
Feeding
Looking at You
Tonight
Details and Thoughts
1/3/14 – The Two Signs
Tommy is Coming Home
Sticking Points
Walk In Walk Out
Details and Thoughts
1/4/14 – Leaving
One Hour To Go
We have left the hospital!
We are Home!
Evening at Home
Details and Thoughts
1/5/14 – The New Chapter
Leaving Home
Packing Up
Leaving the NICU
Home
Night
Today
Shannon
Cassie
You All
Glossary